Lots of sh!t is going on at home with my wife. I lifted only once this week and twice last week. With all the below plus my hamstring tear, lifing is definitely on the back burner and its kinda silly to log it. I have not been keeping up with anyone elses logs and have not really been on T-Nation at all lately. Even if I’m not around I’ll be still lifting when i can etc until things get a little more normal.
She has Rheumatoid Arthritis and has had it for a number of years now. Unlike regular arthritis which is caused by wear and tear of specific joints, It is an autoimmune disease where your immune system attacks your own joints and will destroy them if not medicated for life. I give her weekly shots of Enbrel for that.
Quite suddenly towards the end of the summer, her vision started to quickly deteriorate. Almost overnight she could not drive anymore because she had permeant double and blurry vision. This is very uncomfortable to deal with and makes every day activities like reading, driving, watching tv, doing bills impossible.
It did not go away and we began the process of going from doctor to doctor trying to find answers. It has been an extremely scary for her as you can imagine. Her mom has been a great help in coming over every day to drive the kids to school, take her grocery shopping etc because she has been helpless to do any of these things on her own.
She has not driven in over a month now. Besides her vision issues, she has also had some other symptoms like temporary loss of control of muscles in her throat when speaking, and difficulty opening and closing her eyes.
We’ve been going to different doctors and specialists in the city every week and getting all the tests done. x-rays, cat scans, mri’s, eeg’s, lots of vials of blood taken, etc. We finally got a diagnosis this week. I took the day on Tuesday and brought her into the city to see a Neuro-opthamologist.
It’s another autoimmune disease called Myasthenia Gravis. MG is the acronym. It is neuromuscular disease where the immune system attacks the muscles and nerve endings.
While I was in Toronto for work on Wednesday, she came into the city with her dad to see a specialist who gave her the options for treatment.
Option 1: high dosages of prednisone for life.
Most common side effects of prednisone are high blood sugar/diabetes, weight gain, osteoporosis, constant nervousness, sleeplessness, depression, etc.
Option 2: open chest surgery to remove the Thymus gland and lower dosages of prednisone. The Thymus gland is one of the root causes so it’s removal usually leads to lower medication being necessary and sometimes remission. Depending on your personal physiology, sometimes less evasive surgeries are possible but the standard way is to open up the breast plate as in open heart surgery.
We have appointments with thoratic surgeons next week to discuss options.
If we do nothing, it will get worse and she will have to be hospitalized if muscles associated with her breathing become effected.
As you can understand, this is a lot to take in and things are pretty crazy right now. Obviously, it is a relief to know what the issue is and that she doesn’t have cancer or a tumor and isn’t going blind. But, its still a lot to take and adjust to the new reality. Things will continue to evolve but just wanted to give a snapshot. Hopefully she’ll react well to the medicine, we can avoid surgery, and things can settle down a little.
peace out