Thanks everyone. The doc has started her on 20 mgs a day of prednisone and has also given her some mestinon which helps alieviate some of her symptoms for a few hours.
Gregron go right ahead and pass on our story to your brother. I feel like this is just the begining of a long journey though so bear that in mind.
We have a follow up with the neuro this wednesday where I expect my wife will say she isn’t going to rush into the surgery. He may decide to ramp up her dosage after that or add another medication. We are meeting with two surgeons to talk about that option. I’m reading online that its very hard to get somebody to do the less invasive surgery. Suposedly if even a scrap of thymus gland is missed it can grow back. They like to crack the breast plate and open it up to make sure they get it all.
Instead of spending time dicking around on here I have been trying to soak up as much knowledge as i can on this disease when i’m on the computer. Visiting support groups and forums. googling everything i can think of etc. You guys and gals are all awesome though so don’t take that the wrong way. I can’t wait to get back to dicking around on here.
My wife and I are both doing much better mentally then we were in the middle of last week after the diagnosis. People adjust and pick up and do what they gotta do when things get tougher.
It was a nice weekend too because my eldest daughter turned 4 so it was all about her, her party, and her presents, etc. I lifted yesterday and today which was awesome. I needed to get back to some kind of normal.
Hi Derek. No change yet from the prednisone. She’s only been taking it for a few days. I believe today is the fourth day. We were told that it may take 4 to 6 weeks to notice a positive change from the prednisone but I’m hoping that it doesn’t get any worse now that its in her system.
[quote]DJS wrote:
Hi Derek. No change yet from the prednisone. She’s only been taking it for a few days. I believe today is the fourth day. We were told that it may take 4 to 6 weeks to notice a positive change from the prednisone but I’m hoping that it doesn’t get any worse now that its in her system.[/quote]
Fuck man keep us posted alright here or G+, email or PM.
This is not my area of expertise, I had a few patients with RA and scleraderma but I had them with the specialist quick.
