Here Goes...


Hey everyone! I’ve been a member for awhile now. Never got around to posting till now though. I was content to sit back and soak up all the great information on here.

About three years ago I was diagnosed with a very rare muscle disease called McArdle’s disease. I was born without the enzyme Myophosphorlase. Basically what that means is my body can turn carbs to glucose to be stored in the muscle, but once it gets there it can’t be used for energy because there is no enzyme.

Anyway, to make a long story short, after extensive testing, my doctors said I wouldn’t be able to lift ever again. They said, you might be able to lift really really light weights for really really high reps. When i heard that I almost killed someone lol…

Anyway, I went through some depressing times, quit working out, ate like shit, and got up to a fat 215. I looked and felt like shit. I decided to take some initative and research my disease a bit. I found out how to manage the disease and slowly but surely I got back into the gym. I managed to lose about 20 pounds and here is a pic of me at roughly 195.

Nothing incredible. But i’m proud of my accomplishment and I’m ecstatic that I can finally be back in the gym doing what I love. I look and feel so much better. I know this was long, but thanks for listening!

Wow, great job in overcoming that disease. Keep it up!


One more… kind of a side chest.

Ya might not have this incredible physique, but considering your condition and what not that’s very very impressive in my mind.

Awesome! Keep it up.

D

I know nothing about your disease but I know doing something you’re supposed to be unable to is great. Take pride in that, keep it up, and keep making progress.

[quote]tigerbalm wrote:
i’m proud of my accomplishment and I’m ecstatic that I can finally be back in the gym doing what I love. I look and feel so much better. [/quote]

You SHOULD be proud!
This is VERY inspirational… thanks for sharing your story.

Can you tell more about how you reversed your condition? Was it through nutrition and training?

Great job!

you look like Rufio in your second picture.

[quote]Chef Lisa Marie wrote:
tigerbalm wrote:
i’m proud of my accomplishment and I’m ecstatic that I can finally be back in the gym doing what I love. I look and feel so much better.

You SHOULD be proud!
This is VERY inspirational… thanks for sharing your story.

Can you tell more about how you reversed your condition? Was it through nutrition and training?

[/quote]

What she said :open_mouth:

[quote]Doug Adams wrote:
Wow, great job in overcoming that disease. Keep it up![/quote]

Thank you Doug! Much appreciated!

[quote]PF_88 wrote:
Ya might not have this incredible physique, but considering your condition and what not that’s very very impressive in my mind.[/quote]

I’m definitely a work in progress. There are still a lot of setbacks that come with the disease, but I appreciate your support!

[quote]Dedicated wrote:
Awesome! Keep it up.

D [/quote]

Thanks D! Oh, and your avatar has ALWAYS been by far the best :wink:

[quote]DSmolken wrote:
I know nothing about your disease but I know doing something you’re supposed to be unable to is great. Take pride in that, keep it up, and keep making progress.[/quote]

Thank you DSmolken! It always makes it easier when you have people behind you who are very supportive and love the same things you do… especially when it comes to weight training.

[quote]Chef Lisa Marie wrote:
tigerbalm wrote:
i’m proud of my accomplishment and I’m ecstatic that I can finally be back in the gym doing what I love. I look and feel so much better.

You SHOULD be proud!
This is VERY inspirational… thanks for sharing your story.

Can you tell more about how you reversed your condition? Was it through nutrition and training?

[/quote]

Thank you so much Lisa! You’ve always had kind things to say to everyone, you’re an awesome addition to T-Nation! My condition hasn’t actually been reversed. It is more “under control” if you will. One of the biggest problems I had when I first started training after the layoff is that my body wasn’t used to anything physical at all. I would go into the gym and after a workout that wasn’t even that intense, my body would literally cramp up and swell very badly. I was SOOOOOO sore that I could hardly move my body.

Because I didn’t have glucose to use as energy my body literally was using the protein in my body (a.k.a. my muscles) as the energy source. So in essence I was destroying muscle tissue. After a workout I would urinate myoglobin. Myoglobin is basically broken down muscle tissue and other wastes in my body. It would be so bad that my urine was literally the color of cranberry juice.

The danger in this is that if too much waste is produced too many times, the kidney’s can’t filter it and a condition known as rhabdomyalosis occurs. The kidney’s will shut down and you can die. It has happened before to other people. So needless to say I was a little scared! To take control I had to make sure I ate at least 200 grams of protein a day. At least that, more was better though.

Also, I had to be able to read my body and make sure that if I was pushing too hard I would back off. And one of the most important things, if not the most important, was to make sure I drank at least one gallon of water a day to help flush my kidney’s. After I had started training for awhile, my body would find different sources of energy (not just muscle I already had). After some time the myoglobin started going down.

The swelling and excruciating pain (I was actually hospitalized on one occasion for three days) I experienced started going down. And now after a few years I’m relatively safe in the gym. Although occasionally I do have a bout with the disease it is much more under control.

The thing that is funny to me is that to control the disease, I basically just have to be doing the things that everyone SHOULD be doing anyway. It’s just that in my case, I HAVE to do it or risk some serious consequences. Very very long here but I hope it clears up a few questions. Thank you once again for all your support. I really take it to heart. Even though I’ve only recently posted, I really do feel like I’m close to many of you, like one big, happy, rowdy, perverted, ripped up family :slight_smile:

[quote]soonermark99 wrote:
Great job![/quote]

Much appreciated!

[quote]Epimetheus wrote:
you look like Rufio in your second picture.[/quote]

Lol… that is not the first time I’ve gotten that. In fact, at a choir concert back in high school, the entire student body stood up when I walked out on stage and started chanting, " Rufio! Rufio! RU! FI! OH!" Teacher was so pissed.

Respect

Hey man way to take your life back into your hands!! Good to hear you didn’t give up and that you are doing so well!

Btw I like the tats man!

Keep up the good work and let us know how it goes!

Myoglobin is just an oxygen store, like haemoglobin. It is stored in muscle tissue, but I never heard of it being excreted!?