I’ll also admit that it’s emotionally difficult for me to go back and dig through those labs because since I started TRT 3-4 years ago my whole life and Health and mind have fallen apart. It’s hard to go back and see some of the dates on those labs and realize how long I’ve been unwell. But it’s on my list, there’s a few things before it for my job / disability etc. I’ve gotten more done in the last few days, have a brain MRI w / wo contrast scheduled now. It’s going to take a few hours to go through and block out my info on the many many lab slips then see if I can do the same with my Defy records. I’m going to have to clear a day to do it because I’m struggling. Maybe tomorrow.
You know what. I don’t think my brain is rejecting it, but it’s somehow affecting it negatively and it feels physical. My head hurts all the time mildly and my head and mind feel constantly uncomfortable like I’m concussed. Right now my top lead is that it has something to do with pressure either CSF pressure, blood pressure, or maybe even water on the brain.
Here’s a weird and embarrassing anecdote. My BP is fine probably been tested 100 times in the last few years always fine, but on the toilet, when I push, I’ve almost passed out a few times and this is normal push not bad diet / stopped up push. I take fiber daily. Weird right?
You know what it feels like. Take the moment right before you break down crying, your head feels like it’s about to pop and your face turns into a grimace, then you cry and the pressure is relieved. It’s like feeling that moment at a lower intensity all the time, and I can literally feel that my face is in a grimace constantly from the discomfort. Even under other facial expressions I can feel the grimace microexpresion, sometimes even when I think I’m smiling others see the pain / grimace combined with the smile and ask if something happened / if I’m okay.
Dude. Can you stop? You aren’t helping. Are you feeling good about yourself shaking your head in disgust at someone in my condition? I’m getting like one or two things a day done right now and I have more important things to do than responding to your bullying over my labs such as filling out disability paperwork, and other forms my employer requires and scheduling scans (Brain MRI w / wo contrast) and making doctors appointments. I’ll get to it.
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You will get through this and chances are things will be better than now.
And you don’t have to respond to the negative people on this forum. Some think they know if all and are better than Dr s and think they have seen it all.
Oddly enough I’ve had that burning sensation in my head before. It would drive me crazy and start causing bigger mental issues. The only thing that seemed to stop it was literally having a small amount of THC. I don’t even know what it was but I’m starting to think it was a type of inflammation that was happening. Just wanted to add something to possibly help.
I’m confused you said HCG + SERM later but then said “HCG in combination or solo isn’t a proper restart drug either.” which is it?
I wanted to mention something that I recently recognized. My symptoms on T mirror CTE. Whenever I start back on T my head starts hurting and then a few weeks or maybe 2 months later all the other CTE symptoms start and intensify over time.
I got labs drawn yesterday. I’ll post them when I recieve them.
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I was at 2.5 and until i started thyroid my health was in the shititer. i was fatigued to death and suicidal. Thank god i had a doctor who knows his shit.
This guy is running around telling folks they are ok at 3.5. He didn’t even mention free t3. It is like saying “your total T is 1k, its perfectly fine”.
This guy’s issues very well could be thyroid or something else or a combination of many. He very well could be banging his head on the wall blaming T, but his T is not the cause and he simply needs to go into other solutions and find his fix.
I wish folks would take thyroid talk a bit more seriously. majority have never had to deal with it, but i have, and its horrendous. If i had to decide between low thyroid or low T, i would choose low t any day of the week.
This doctor was doing what any expert on thyroid would do. You want thyroid TSH low dude. I think you continually blame T, but there is more to the story.
What else are you taking besides the T?
Thyroid isn’t going to cause these issues, but it will fix your fatigue and allot of mental health issues can arise from low thyroid numbers. I had them and they are gone.
You tried all the esters right? But your posts paint a picture of impatience and fear brother. You are making things worse than they are, i can see it happening when you write.
Your body makes testosterone and has done so since you were a child. you didn’t have these issues back then and the T will not cause those issues now because it is a bioidentical hormone. The issue very well could be the type of oil being used in your T.
Your thyroid meds probably would of helped if you hadn’t just thrown him under the bus with your reaction.
There is something else going on here and thats the mental aspect of your health. you are amplifying everything and you need to get a hold of this.
Did you list out everything you have taaken and everything you take now?
My understanding is that those TSH numbers are OK unless you are on thyroid therapy. Are you saying that the range labcorp shows isn’t good?
Right now I’m taking:
.25 ml of TestC EoD
30mg Lexapro
Recently started taking 10mg Adderall 2x a day as I feel so awful the last few years I need it to continue to get things done like going to doctors. This is very new compared to the years of awful sides.
I have clonazepam 1mg that I take as needed and try to take as infrequently as possible
I sometimes take 100mg of trazodone to help me sleep
I have tried all the esters. Wouldn’t I exist to see a localized reaction if I was allergic to any of them.
I was on thyroid meds for a long time. Probably about a year but weaned off them bc I thought they were contributing to the panic attacks.
I’ve tried many psych meds and they all made me worse.
I’ve tried all the esters, IM, SQ, clomid, hcg monotherapy, and enclophimine, from 3x a week injection to daily injections.
I’m done changing things frequently and plan to ride out feeling awful for at least 2m before making any changes.
And yes my mental health is terrible. I’ve done treatment for that as well, EMDR, therapy, Nasal ketamine, and ketamine infusions. I haven’t felt “OK” or had positive emotions in somewhere close to 2 years. They’ve been extinguished. This experience, going from being fully healthy to terribly unhealthy and having it last years has probably given me PTSD.
It is a broad range just like T is. Just because my T was 307 and my primary care doctor said I was good because I was in range, didn’t mean I actually felt good there. My TSH was at 2.5 at its lowest prior to treatment and I didn’t feel good there either. I am now taking T4 and I feel far and away better than I did prior.
Another thing to mention, is just because TSH is in range, that one lab is not enough to tell everything that is going on with the thyroid. T4 and T3 need to be taken into account and according to some, RT3 as well .Same goes with testosterone. If I had a total T score of 800, it’s a moot point if my free T was bottom/below range due to SHGB crushing it.
Understood, just imagine where I was at though. I went from being super healthy and then I start taking Test, hcg, thyroid, anastrazole, and then psych meds bc I was in such bad shape. I was trying to simplify the equation if that makes sense. And when I came off and was still around 3, that was seen as acceptable.
Also remember, the reason I threw that guy who kept raising my thyroid meds chasing a <1 almost killed me by putting me on high HCG doses and didn’t even know to check my estrogen and flat refused when I asked him so, yeah, I became suspect of his abilities.
I would too if I had all that thrown at me and completely understand your wanting to simplify. In my opinion that is how a doctor should treat, simple as possible then progress. Start with one med only, see to what affect that med has, then introduce another after establishing new baseline if no issues. Throwing the whole kitchen sink at it only creates problems as you don’t know what is causing what, if negative issues arise. Truly hope you find a solution to your symptoms.
Thanks, I appreciate it. Right now I have
A sleep study scheduled at a sleep lab not the take home one.
A brain MRI w / wo contrast
An appointment with a neurosurgeon who specializes in neuroendocrinology (which I didn’t know was a thing until just 2 weeks ago). He will likely want a lumbar puncture (ouch)
Regular appointments with a Psych
soon to be regular EMDR appointments
I’m hoping for lab results today which I’ll post.
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Hey any chance you can explain what you meant with HCG. I did try a reset once with Defy and they did not advise the SERM part. So I have not done what you are describing with HCG then a SERM. I have done HCG discontinuation protocols.
