Hey fellas. Came across this site while researching my own issues with testosterone .I have low T, just like you guys. Unlike most of you, however, I believe my problems originate in an orchiectomy I underwent as an adolescent. If you’ve got the time to read my story, I hope you can help me out some, or, if nothing else, relate a little. Some preliminary info:
Age: 22
Height: 6’3
Waist: Slim. Paunchy with wide hips (fat, not feminine hip-bone.) Seems unchangable
Weight: 190
Body Hair: Some leg hair and some chest hair. Faint “treasure trail”. Seems normalish, but compared to my very hairy ancestry, it seems downright childish.
Facial Hair: Very little. Grows very slowly and is very thin. Not enough for anything approaching a respectable beard or moustache.
Fat: When I was overweight, I carried fat like a woman. I had very large hips and breasts as well as a very feminine behind (to my embaressment). Now that I am slim, it has decreased in mass, but remains very feminine in distribution.
Health: Only surgery was orchiectomy. Also had a harmless cyst on my thyroid when I was a newborn.
Drugs: Only vitamins. I did take finasteride for about one and a half months at the regular dose when I was 20 but I promptly ceased it when I read about the horrible damage it can cause.
Diet: Normal. Try to eat healthy with good meat and good rich wheat. I force myself to eat at least a few servings of fruit and veg a day. I think I cut down on calories too sharply when I decided to lose weight at 20 years old, but my diet for more than a year has been very healthy
I’ll provide a brief timeline of my issues and then provide my current bloods in accordance with your guidelines. I hope you guys can help me make sense of this mess, because my GP, a urologist, AS WELL AS AN ENDOCRINOLOGIST certainly couldn’t. I’ve got an appointment with another endo coming up this month and I want to have some theories and solutions to my problem so as not to be dismissed as being “low normal” and “subclinical” yet again. Your help is greatly appreciated.
Pre-14:
Healthy and developing normally. Libido: Furious. You remember your early teens.
14:
Left testicle had descended along with the other normally ,but, as the years went by, it drifted back in to my abdomen. The Urologist discovered it and then removed it promptly as it would be a cancer time-bomb for the rest of my life if left alone to cook within my groin. He reassured me that my remaining testicle would compensate by producing more hormones and I would continue to live a healthy, vigorous life.
14-20:
The years following my surgery are my whiny bitch era. My weight ballooned (doubled even) and the new weight went right to my hips, behind, and stomach, giving me a feminine appearance. I also developed major gynecomastia-- not pseudogyenecomastia, but full-blown development of knobbly breast glands, complete with sensitive and eternally erect nips. Brain fog was the worst. It got so bad it was almost a learning disability. My libido diminished to almost nothing and my penis became less and less sensitive and produced so little semen (dry ejaculations) that I may as well have not have had a penis at all. Most distressingly, I felt myself becoming more and more feminized in my personality and facial features. My emotions faded away and everything became grey.
21-22:
Despite having no motivation or even passion I forced myself to lose weight, deciding that my excess fat was the source of my problems (I had no inkling yet that I had a testosterone deficiency). I lost the weight over a period of about a year and struggled in to a healthy body weight via diet and exercise. Despite this, all of the symptoms I describe above remained, though the brain fog and feminization did somewhat lessen. Also, during the course of losing weight I discovered that I was unable to put on any muscle. Really none at all. This lack of musculature is so severe that my lower back is constantly sore and my joints ache like an eldery man’s. All this and I’m only in my early 20’s. Realizing that my weight was not the source of my problems, I sought medical help. Becoming more aware of testosterone and TRT in my search for answers, I went to my GP to have my hormones tested. This was fruitless. I was within the “low normal” range, my GP told me, “try an anti-depressant.” unsatisfied, I followed up with a urologist and endocrinologist. They gave an identical answer. “Consider volunteer work,” my endocrinologist said, well past the point of retirement.
22:
I Finally found an endo who was willing to dig a bit deeper into my hormonal profile at a private men’s clinic in Toronto. He tested me thoroughly and the results were as follows. These are in British/Canadian units but I have included the reference range as… well, reference. Also note that I had been doing everything I knew in order to raise my testosterone and lower my estrogen naturally in the months preceding this test (diet, training, rest, vitamins–even positive thinking and practiced assertiveness).
Total T: 16 nmol/L (8.4 - 28.7)
Free T: 29.1 pmol/L (31 - 94)
LH: 6 IU/L (2-6)
Estradiol: 110 pmol/L (<157)
TSH: 2.79mIU/L (.35 - 5.00)
Prolactin: 5 (<18)
Finally. Confirmation that something was indeed wrong with my hormones after being turned away time and time again. Despite this, the doc was nervous about initiating TRT with me. He expressed concern about rendering me sterile or even inducing prostate cancer. I assured him that as my quality of life with my lousy hormone system was just about nil, I was willing to take some risks. He presrcibed Androgel, 5g a day and sent me on my way, to be re-tested in 3 months time.
Androgel:
While on Androgel I experienced a gradual improvement in my mood, body shape, and energy in the first couple of months. I was sleeping better, and even awoke with the occasional morning erection. Things were improving. I was excited. Until month three. At month three of androgel, my muscle mass melted away from my body. I was fatigued all day and yet could not sleep at night. My gynecomastia, which had persisted despite by weight loss but which had become more subtle, grew exponentially. I panicked and scheduled an appointment with the endo.
“Well, this was a risk,” he said.
He then advised me to stop the medication IMMEDIATELY and ushered me out the door. I could call him in three months, if I wanted, to arrange the removal of my boobies. That was all he had to say. He wouldn’t even test my hormones again.
Androgen withdrawal:
Guys, the next three months (the past three months, actually), have been hell. My muscle tone has evaporated and my fat has swelled out, making me look like an adolescent girl. An agrophobic, depressed, and sleepless little girl. The last couple of weeks have seen a slight upswing in my mood, but it has been accompanied by a persistent ache in my testicle, which is now pressed tight against my groin in a retracted and wrinkled scrotum. For the first time since the orchiectomy I am also experiencing hot-flashes. It’s a nightmare I know some of you are all too familiar with.
So, I put it to you guys. Is there anything in my story and my blood work that stands out to you? Is there some connection I and my doctors have missed? Previous doctors have dismissed any fallout my orchiectomy might have had on my T but given that all of the symptoms began immediately following the operation, my very low levels, AND the improvement I experienced on the testosterone, it seems like an open and shut case. I know we have to be our own advocates in this so I’ve got to ask you: What the hell is going on with me? What can I tell my doctor to convince him to treat me? Please feel free to ask me about any details I may have missed.