Libido Issues on TRT - High Prolactin Due to Prolactinoma

I’m a 30-year-old guy, standing tall at 6 feet and weighing in at 210 pounds. I keep active in the neighborhood, maintaining good overall shape. Despite this, I’ve been grappling with frustrating issues related to erectile dysfunction (ED) and my overall sex drive. Three years ago, I embarked on testosterone replacement therapy (TRT) due to symptoms arising from a seriously low testosterone level of 7.8 nmol/L caused by a prolactinoma, which was driving up my prolactin levels.

My concerns about ED have been falling on deaf ears with my endocrinologist, and no significant action has been taken. Currently, I’m on a TRT dosage of 160mg per week, split into two injections of 80mg each, administered every 3.5 days with intramuscular injections in the belly. According to my endocrinologist, the likely culprit is elevated estrogen levels, currently sitting at 174 pmol/L, while my testosterone is at 23.3 nmol/L. Despite shedding some pounds, my estrogen levels persistently remain high.

Frustrated with the ongoing libido issues, I took matters into my own hands and obtained Arimidex from the black market. I started with a dose of 0.25, taken 24 hours after each injection (every 3.5 days). After two weeks with no improvement, I increased the Arimidex to 0.5, following the same schedule. Unfortunately, my libido not only failed to improve but actually worsened.

When I ran blood tests, here were the results:

  • Prolactin: 111.7 ug/L (reference range: 3.8-20.6 ug/L) – SUPER HIGH
  • Estradiol: 40 pmol/L (<162 pmol/L)
    • US Reference - 10.89 pg/mL
  • Testosterone: 19.6 nmol/L (reference range: 8.4-28.8 nmol/L)
    • US Reference – 565 ng/dL

I suspect I crashed my estrogen, my testosterone was lower than expected, and, of course, my prolactin is high due to the prolactinoma. I reached out to my endocrinologist but won’t be able to get an appointment until July 2024, thanks to the joys of the Canadian healthcare system. So, I’m looking for answers on what to do next.

From my research on prolactin, it indirectly impacts libido by reducing testosterone. However, since I’m taking testosterone it doesn’t matter (shrug), I’m not sure what to tackle first. Here are my thoughts:

  1. Pin more frequently and increase the Testosterone dosage, as my levels are still low. Pin every 2 days with 60mg and start pinning subcutaneously instead of intramuscular. I’ve read that it helps with absorption and regulates estrogen levels, preventing spikes. Remove the AI and maintain this frequency for 2-3 weeks. Take blood tests to assess libido and estrogen levels.
  2. If libido remains low due to elevated estrogen after stopping the AI, reintroduce the AI. If I’m pinning every 2 days with 60 mg, how much Arimidex should I use and how often should I start with? I need help with that.
  3. If both levels are ideal, should I start looking into prolactin? Maybe it plays a bigger role than I think. I’ve heard it can impact Free testosterone (SHBG) or even affect libido via dopamine. As I know it makes an impact as well.

I’m also considering additional blood tests. It’s challenging to get blood tests in Canada, so I might have to do it privately. I’m thinking about SHBG, but is there anything else that could explain libido issues?

I’m quite lost on what to do next and the best way to approach this. Any help and recommendations would be hugely appreciated.

You have ED because of high prolactin. After sex, men have what’s known as a refractory period.

During this time the inability to get an erection is the direct result of higher prolactin.

After prolactin levels decline, the refractory period ends and erections are possible again.

Try some P5P supplements at 200 mg. If this doesn’t work, you may need your doctor to prescribe cabergoline.

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You need to be supplementing P5P as the least invasive protocol. 100mg/day.

If that doesn’t work (which I do not believe will fix all your high prolactin problems), you may be a good candidate for cabergoline… something that should not be lightly trifled with.

Do you mean subqutaneous?

The Good news is i already have my hands on Cabergoline from my endochnologist. Last time it caused me headached hence why i stopped but will try again. 0.5 once per week was my dosage. I do agree that P5P wont do much for my case as its highly elevated.

Yes i meant Sub Q.

I will also be injecting 50 mg of test e2d hopefully that levels my estrogen out and dont need an AI anymore.

so thats my game plan. Of course will get more blood work.

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Address the issue that is causing the problems, and for you that’s the PRL. You already know you have a prolactinoma, I would treat it.

P5P doesn’t do much TBH. caber or pramipexole might help you. i personally think pramipexole is superior. but honestly I would keep digging why it is so high, those drugs are poison long term