Praying for you my man.
Still here buddy.
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Nothing like waking up everyday and going to the bathroom mirror to see how much your body’s drastically changed overnight. As sad as it is, it’s actually pretty incredible. To see what can happen to your body cosmetically, chemically and on paper in 24 hours is mind blowing.
It’s like when your a kid and 10 minutes into a car ride you claim you’ve gotta piss and your dad flips shit, saying “ALL OF A SUDDEN EH? YOU DIDN’T HAVE TO GO 10 MINUTES AGO?!” Meanwhile you actually didn’t. Yeah, it’s kinda like that. You wake up and your blasts cells are through the roof, your neutropenic, anemic and 5 kilos lighter, meanwhile all you did was shut your eyes for 8 hours. Kinda weird.
Reading Sports Mechanics for Coaches right now and must say it’s a great book. In particular for me. As a kid growing up not playing many sports or caring about any and wanting to get into the field of Strength and Conditionining, it helps to understand what’s actually involved in various sports from an anatomy and physiology point of view so that you can properly design a resistance and conditionoing program appropriate for benefitting the giving athlete at their sport.
I’m also really into Tapering and Peaking for Performance . I love periodization and thiink that this book’s great because it talks about preparation for “THE DAY” if you’re already at that level and competing for “THAT DAY” then the only thing left to do is to maximize performance on “THAT DAY”. This could be the difference between accomplishing a lifelong goal or going home with one ofthe biggest regrets of your life, knowing that you just blew your shot.
I’ve been working with occupational and physical therapy. Not to impressed. Mostly lazy people that havn’t personally reviewed my MRI’s , don’t take it all that seriously and have yet to show me any improvements.
Ive just fiished my 2nd round of chemo and am ready for another Bone Marrow Biopsy next week. Hopefully my blasts cells are low and we can go ahead with transplant, mid december. As of right now that’s the plan, for a transplant in mid december. Hopefully everything goes accordingly, my blasts cells are <5%, ideally at 0% and I ca get my transplant on the 18th of december. This way without drastic complications I’d probably be out of here for next summer.
[quote]EF5127 wrote:
Nothing like waking up everyday and going to the bathroom mirror to see how much your body’s drastically changed overnight. As sad as it is, it’s actually pretty incredible. To see what can happen to your body cosmetically, chemically and on paper in 24 hours is mind blowing.
It’s like when your a kid and 10 minutes into a car ride you claim you’ve gotta piss and your dad flips shit, saying “ALL OF A SUDDEN EH? YOU DIDN’T HAVE TO GO 10 MINUTES AGO?!” Meanwhile you actually didn’t. Yeah, it’s kinda like that. You wake up and your blasts cells are through the roof, your neutropenic, anemic and 5 kilos lighter, meanwhile all you did was shut your eyes for 8 hours. Kinda weird.
Reading Sports Mechanics for Coaches right now and must say it’s a great book. In particular for me. As a kid growing up not playing many sports or caring about any and wanting to get into the field of Strength and Conditionining, it helps to understand what’s actually involved in various sports from an anatomy and physiology point of view so that you can properly design a resistance and conditionoing program appropriate for benefitting the giving athlete at their sport.
I’m also really into Tapering and Peaking for Performance . I love periodization and thiink that this book’s great because it talks about preparation for “THE DAY” if you’re already at that level and competing for “THAT DAY” then the only thing left to do is to maximize performance on “THAT DAY”. This could be the difference between accomplishing a lifelong goal or going home with one ofthe biggest regrets of your life, knowing that you just blew your shot.
I’ve been working with occupational and physical therapy. Not to impressed. Mostly lazy people that havn’t personally reviewed my MRI’s , don’t take it all that seriously and have yet to show me any improvements.
Ive just fiished my 2nd round of chemo and am ready for another Bone Marrow Biopsy next week. Hopefully my blasts cells are low and we can go ahead with transplant, mid december. As of right now that’s the plan, for a transplant in mid december. Hopefully everything goes accordingly, my blasts cells are <5%, ideally at 0% and I ca get my transplant on the 18th of december. This way without drastic complications I’d probably be out of here for next summer.[/quote]
Thanks for the reading suggestions. I’ll be checking those out. Hope all goes well for you next week and in the future.
Hey buddy,
Good to see that things are kind of getting better. Fingers crossed that the transplant goes ahead.
Thats book sounds interesting. Does it have much about soccer players? Im trying to pen a new routine for preseason at the moment.
Anyway keep strong. Make sure you keep us up-dated. Always look foward to reading your posts.
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Hope all’s going well, chief. Send us an update if you can.
Lower back is killing me and things look grim physically right now. I just can’t picture me being able to function physically at a normal level again. I can’t stand up, support myself, walk or even dress myself. I’ve been going to to OT and PT, but it hasn’t been very effective. I went for a check up MRI and I have a number of vertebral fractures and it’s hard to expect them to heel while battleling active and aggressive leukemia. Also the fact that I have a number of drugs breaking down and destroying my body, along with low testosterone, low activity and crappy diet.
Enough of the bad news though. A new doctor, who I dealt with last transplant and really liked has stepped in and has made me feel a lot more comfortable with what’s going on and what’s going to happen. She agree’s that the situation is more about prevention, rather than treatment. We got my transplant moved up 5 days and we’re running a dose of vidaza or azecitadine for 5 days, this will go until the 6th of december. We’ll then only have the 7 and 8th of december in which they’ll prepare me for transplant by installing a hickman and giving me all the necessary transfusions. On the 9th they’ll start my pre-transplant prep regimen and on the 15th of december I’ll receive my transplant. Hopefully things go well, my body excepts and it’s smooth sailing from there. Right now my blasts are 0, this vidaza should hold that until my prep regimen and then that should hold it right to transplant, this way I can go into transplant with blasts at 0%. This is best case scenario. Without this vidaza cycle my blasts would climb by the day and it would either prevent me from getting a transplant all together or put me in a terrible position for success. With monosomy 7 and trisomy 8 the situation is to aggressive to just sit around and do nothing in between chemotherapy cycles. Then again continuous chemotherapy would be far to toxic. Vidaza is a very mild drug that can be ran to maintain or in my case even improve the situation in between cycles. I’ve had great success with the drug in the past and have responded exceptionally well. I’m really glad they’ve decided to go ahead with it as reassurance and things should play out fairly smooth from here. Be back hammering weights, on campus and partying in no time. Count on it.
On another topic the articles have been great lately and everyone should DL Berardi’s book on IF that;s FREE and also rules.
For last post…
“Smoking the Peace Pipe” as I’ve heard it called.
Glad to hear you’ve got a doc on your side bud. That always helps.
Best of luck, and keep fighting!
Good stuff, was starting to get worried. Really relieved to see things are finally moving and progress is being made. Stay strong and keep us posted!
Went to occupational and physical therapy the other day and it went something like this incline chest press 3x10 as my press then machine chin ups 3x10 as my pull. That’s all I could handle was one push and one pull 3x10 with 30 sec rest intervals. We then leave the weight room and do a core routine downstairs. I also do cycling and interval walking around the unit.
As far as medical, my back’s killing me, but they have a surgical option for when they get the leukemia out of the way. The procedure involves separating the compression and then filling it with cement. Tomorrow I’ll be going to get my Hickman placed in and Thursday I’ll start my myeloblative Chemotherapy regimen. Involves super harsh drugs at super harsh quantities.
This will bring me right to the 15th which is my transplant date and then it’s countdown till going home. First while after transplant is the most horrific experience of a persons life. Anyways I’m late for an x-ray…post back soon!
[quote]EF5127 wrote:
As far as medical, my back’s killing me, but they have a surgical option for when they get the leukemia out of the way. The procedure involves separating the compression and then filling it with cement.[/quote]
Vertebroplasty? Awesome, man. My dad does those on occasion. All of the patients he’s treated have thanked him to no end. I’m sure it’s going to go great for you.
Stay strong and keep fighting it.
Thinking about you bro. Keep strong, keep fighting. You’ll be back smashing weights and books in no time.
Marc
Hey buddy, good to hear from you.
Sorry if I missed it somewhere, but how did you hurt your back? Or was it just a degenerative side effect of the cancer?
Make sure you keep us updated.
Bird.
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Buddy?
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Hi all,
I regret to inform you our friend EF5127 passed away yesterday. As you many of you know he was an incredibly strong individual and was a constant inspiration to everyone around him. Please keep his family and friends in your thoughts and prayers.
Ugh. RIP to the strongest guy on this site. Anyone who ever complains about anything should give this thread a read, and learn to appreciate how lucky they are.
Rest in peace, EF5127. While we may not have known you personally, your words and struggle have truly inspired many of us to take a new outlook on life and treasure each and every moment for what they’re really worth. It seems unfair that you should pass on so soon in life with so few of your goals accomplished, yet the impact you’ve had on your readers has been profound.
You will be missed.
Damn, I was praying he’d pull through round 2. He was one tough dude, and an inspiration for sure, even when he was down he was cheering me on. RIP man, its a damn shame.
I just wanted to put this quote of his here, that I think really shows his strength, his selflessness, and his never-ending positive attitude, even when facing a worse situation than most ever deal with.
This may be weird since I didn’t even know the guy, but I feel I personally gained a lot from this thread and I think that others should, and that he’d want them to.
[quote]EF5127 wrote:
Yesterday I was asked a question in which people ask me all the time.
"I wouldn’t wish that on my worst enemy, nor do I think anyone deserves it, but I think you deserved it the least out of anybody I know. Did you ever cry and ask yourself “Why me?”
My answer to this question’s always the same and always will be. First off…I don’t cry. Unless I’m poked in the eye or it has nothing to do with me personally. Secondly I have to look at that person in confusion and shock and say “Why not me? I mean I had a horrific situation. I literally had a bad prognosis on top of a bad prognosis, on top of a bad prognosis. Even with everything I’ve been through I still consider myself lucky and to be truthful, a little bit thankful. Everything I had to deal with and overcome was something I dealt with really well and made it through no problem. Here I am today and look at me. I mean we’ve all got problems, but it’s not so bad. I’m just thankful it was me and not you or him or someone I love or care about because maybe they wouldn’t have been so lucky. If I had to bite the bullet on that one to spare someone else that I love or care about, I’ve got no problem with that. If there’s one thing I know it’s that everything happens for a reason and only time will tell. There’s things that happened to me years ago and I sometimes just now realize why they happened. Then there’s things that happened years ago and I still don;t understand why they happened, but I know I one day will.”
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