Sorry guys - so much been going on in my life for the last while I ain’t been around much.
Thanks once again for all the well wishes.
So, things are looking very good. Very good indeed. I was on a clinical trial of some weird ass combination of oral Chemo mixed in with some regular IV stuff.
First few were OK - I was wondering what all the fuss was about or if chemo simply wasn’t going to affect me. Then it started.
I have a very intimate relationship with my toilet bowl now. We’ve stared at each other many, many times. For long periods. day and night.
I think the best advice given to me was by Alwyn Cosgrove who said that ice cream and sodas taste the same on the way up as they do on the way down. It sure beats dry retching. Especially when the puke tally is 30+ in a day.
Anyways, the tumour although it appeared fucking huge to me has pretty much had it’s ass kicked. I was even laughing at it whilst puking and thinking this is hurting you more than me. Only just though!
My last scan has shown nothing left even on the highest resolution available. My bloods are coming back a bit weird for a normal healthy person but apparently I’m doing OK given the treatment I’ve been through and things will continue to settle down.
I’m still on a mountain of pills but no more chemo for at least a few weeks pending scan and blood monitoring.
I think the worst thing has been sleep deprivation. I’ve felt drop dead tired and yet not been able to sleep. Sometimes for days. It’s affected my short term memory quite badly for some reason.
An example would be making a cup of coffee. I’d walk into the kitchen, and stand there sometimes for 20 minutes or so trying to remember what I was doing there. Then another 10 trying to remember all the component parts of making coffee.
I’d have to line things up and keep checking them until I was sure I had everything right. Finally I’d be ready and realise I hadn’t lifted a cup out of the cupboard.
Fortunately this was an extreme and rare thing but even now I can’t remember dates or number like I used to. I have no idea what dates my kids were born on for example without looking it up.
I’m hoping with time that will clear up.
As well as that I’ve had to quit my job for various personal reasons which I won’t go into openly here. Fortunately my few little side line businesses which only require a few hours a week to be done are keeping me and the kids in a good state of cash flow.
It’s actually helped I think simply because I’ve had no choice but to get on with things for their sakes. Like my mind has just dumped stuff like making coffee and remembering numbers and can focus entirely on just the few things that need to be sorted.
Anyhow - I’m down a lot of weight (218lbs at the moment) and cannot yet get myself to start eating again. I used to complain when I was bulking at around 7000 calories a day, now if I eat more than around 2500 I feel awful.
This seems to be slowly getting better though and although I’m still losing weight it’s slowed substantially.
Training has been hit and miss - just doing it when I can. I feel weak as a kitten. Just a few short months ago I was pulling 500lb+ deads, now my 1rm is around 320 which although i know I can work back up is really pissing me off.
When I can eat again properly I’m sure I’ll make better progress and pack some pounds back on.
So, next scan is in about 5 weeks. Got my fingers crossed that all is as good as now.
My drive for anything other than me and my kids is minimal which is why I’ve not been posting much. It’s not that I don’t want to as such, but I just sit at the keyboard and a few seconds later walk away. I guess the effects will wear off in time. I have my moments now when I get enthusiastic about things again for a while but then slip back into what has become normal for me. Just plain survival and fuck anything else.
I feel rather shit about it especially to a certain person who deserves much better but I think/hope she understands.
That’s about it as far as an update. In the grand scheme of things, everything is going great. It’s just hard to see it sometimes.