Sept 2019: 154mg/week T cyp - TT 716/FT 29/E2 30/prolactin 57 - shortly after this test, really strong erections and high libido
Sept/Oct 2019: 210mg/week T cyp - TT 1231/FT 49/E2 9 (tried anastrozole) - high libido, lousy erections, easily angered (all 3 before and after anastrozole). Defy had me drop back down to 154mg/week. Felt a lot better within a week, and erections returned…for about a week.
Nov 2019: Briefly tried T prop, didn’t like it, went back to 154mg/week T cyp
Dec 2019: 154mg/week T cyp - TT 982/FT 44/E2 42/prolactin 79 - high libido, lousy erections, lowered dose to 140mg/week after this to bring TT back down. Not sure why it’s so much higher on my Sept dose.
Jan 2020 (this week): after a few weeks at 140mg/week, I haven’t felt myself, decided the TT 982 at 154mg was probably a fluke from leftover T prop or something. Just switched to 168mg/week T cyp, and starting to feel a bit better, minus erections.
Admittedly the erection issues have sent me all over the place, as have the changing numbers from the same dosage amounts. Trying to stick to this dose for 6 weeks now and see how I feel, assuming my endo doesn’t scream at me.
Prolactin has been creeping up the whole time, and is definitely out of range.
What you ever had an MRI done on your pituitary to rule out adenoma? Have you ever tried bromocriptine to lower the prolactin just to see if it made any difference? At least you’re narrowing down the fact that your ideal dose is somewhere between 168 and 210. Stick with the 168 for awhile and see what happens. In your shoes, I’d try to find a way to lower prolactin to see what difference it made considering that’s the only variable on a hormonal level that is off.
I should’ve mentioned that. I have a 5mm adenoma. Might be a cyst, they’re not sure. Thing is cabergoline makes the sexual effects worse. Not sure if it’s crashing my prolactin or what. I’m one of the lucky few who barely gets any side effects from it too.
Bromo did nothing but make me fall asleep. I think my libido went up a tick for a day or two, but it was hard to tell.
Meeting with another neuroendo next week, I’ve had one approve surgery already but I’d have to stop TRT per her.
I’ve got a bunch of caber around I’ve been considering trying to see if it helps now.
Because it is an invasive surgery and they have some safety procedures, but most likely it is not necessary.
As much as I have researched for similar surgery for myself last year they consider hematology safety
@bigmistake2
So you found out changing the dosage every month hasn’t completely worked. Maybe try not changing the dosage for a while (pick one) and stick it out for 90 days.
NYC, and as far as surgery, they’re concerned about blood clots and want to see if surgery > lowered prolactin > increased T. I have mixed feelings about it.
This one seems to be going well and my life in general has smoothed out so trying trying to ride this one out. Didn’t even notice I’d changed it so much until I looked at my log and wrote that post.
If ever you don’t get it figured out, I realize he is quite the drive from you in Pickerington, Ohio (8 hour drive or so), but Dr Eric Serrano is a real life Dr House and can solve virtually anything. He would be your man to see if all else fails.
Thanks man. Wonder if he does telemedicine if I can’t figure it out.
Forget if I mentioned it but Dr Saya suggested giving mirapex a shot. So if surgery isn’t gonna happen I may try that too to get the prolactin and cortisol down.
@bigmistake2 he does not. You need to see him at least once. He is OLD SCHOOL. He wants to see you in front of him, how you move, how you walk, how you sit, how you look etc. He can diagnosis things by sight alone at times. The way you bend down to tie your shoe etc. He’s in a league of his own. I’m interviewing him on my channel this Saturday.
The state of Ohio has some really good doctors, Dr. Rob Kominiarek being another one. This guy doesn’t need labs to know what’s going on, he can direct your TRT protocol on symptomatology alone.
I’m gonna keep this option open. I’m hoping this new neuroendo knows what she’s doing. I’m in a pituitary tumor group on FB and she’s got some pretty high recommendations. Hoping to get to the root of things, even if it means surgery (which I’d prefer over more drugs).
It’s hard to imagine anyone better than Dr. Rob, I always thought he was the best Dr. on the Round Table. I didn’t see Eric on video much at all, he was late to the show.
Danny, if by “old school” you men he adheres to Ohio state law regarding telemedicine, then yes, old school. In Ohio, a physical exam is required by the doctor prior to going to telemedicine.