Ulcerative Colitis Update...

[quote]pradaboy wrote:

[quote]Cr Powerlinate wrote:

[quote]pradaboy wrote:
BBB, Bayoubengal, Timothy: Thanks for the extensive write-ups. I’m working on my diet and figuring in some anti-inflammatory supplements. Marijuana is a funny thing though, I have never smoked anything in my entire life, so that’s a bit of a big step, also I have a history of asthma.

CP:

  1. I take no medication right now, I’ve been on a lot of crap, including prednisone, and I just don’t trust it. I felt worse than I did now and it didn’t do anything for me.

  2. I try to steam them as much as possible, some softer veggies I eat raw at times (cucumber, bell peppers, cherry tomatoes). Things like broccoli, cauliflower etc. I will definitely steam.

  3. Right now I would say about four, but there is no real consistency. I might have a good day and keep eating all day or I might feel crap and just eat two or three small meals.

Right now I’ve been really focusing on getting all organic food, sticking to light meat (chicken, fish, turkey) and veggies. When I eat a lot of fruit I feel the fructose also bothers me so I eat fruit two or three times a week now. I’ve eliminated refined carbs completely. All carbs I get in right now are from veggies, fruit or beans.[/quote]

Prada, seriously look into Questran (colestyramine).

It is a bile acid sequestrant. I’m not certain if you actually had any operations, but it is a common problem for people with both UC/Crohn’s to have issues dealing with bile acid accumulation - which thus causes loose/watery bowel movements. Pretty simple medicine with little to no sides.

Good job on steaming the vegetables. That would have been my main recommendation. Raw veggies tore me up.

As for the meals, I actually transitioned to a pseudo-warrior diet. One large dinner meal and small snacks throughout the day - or one large dinner and 2 pulses (incidentally the pulse feast that CT released matches this closely). Basically I get the bulk of my food digesting through the night, which helps with frequency and other issues.

The other thing that helped me was that I gave up drinking non lactose free milk and caffeinated beverages. That was tough but it helped a lot. The digestive tract is very sensitive to caffeine, so it may be worth a shot for you.

[/quote]

Thanks for the advice, I’ll look into those meds.

I’ve been trying the pulse feast as well, not having to worry about food while I’m at work sounded so great. Basically I’ve been peeing out of my ass ever since, so I think all the water is not absorbed well enough.

I don’t drink any milk or coffee, I stick to water and green tea all day.
[/quote]

The questran and oral fiber supplements basically got rid of that problem for me.

Any of my UC brothers try anything new?

For me I’ve definitely found that carbs are a huge issue, especially sugar.

Started taking superoxidative dismutase about a month ago, very promising results in experimental treatment. Also started with ACV few days ago since it seems to have a lot of general health benefits.

This is also intriguing: Drinking Pig Worms to Fight Crohn's Disease - ABC News

Was diagnosed with UC in 1995, when I was 19 yrs old, at the beginning of my 3rd year in college, as a redshirt sophomore, and went from 275lbs to 180lbs in 3 months.

Started off with the usually asulphasalazine and asacol, which did nothing. Then went to prednisone, 60 mg per day for almost 2 years, hospitalized frequently and given IV nutrition. Nothing helped. Tried methotrexate, cyclosporin, 6-MP, it all failed.

May 1996, had a colectomy, total colon removed, now have a J-pouch instead.

Had a total of 20 surgeries up to date, all related to this bullshit.

Tried herbs, fish oil, nothing helped.

Moral of the story, and something my doc shared with me once I was old enough. “Kid, you’re fucked. Your protoplasm is flat out fucked up. Unless you can change your DNA, you’re going to be dealing with this for the rest of your life…I’m sorry.”