I Feel Like I'm Dying After 12 Months of TRT. Something Else Isn't Right

Pharma TRT
42

No such thing as “A” beer when alcoholic. Op better off with the “something?”.

OP, I chased TRT for over ten years. My biggest problem was not T, E2, dht it was my fucking head. I didn’t know I had PTSD, Major depression and GAD.

Seroquel and Buspar have relived about 90% of my anxiety and depression, the real tell was when fatigue disappeared. I feel much more dialed in now as far as TRT goes, all of the wild ups and downs are gone.

I still micro with some stane, but will soon take another shot at T only. This would not be possible if I had not finally got on the meds I needed.

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That is true, but there is no mention here of being an alcoholic.

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Other than alcohol any other addiction? Weed, meth, gambling, porn, sugar, video game?

46

Soy is your answer then. But a TRT doctor should be involved in your recovery.

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48

Keep your inflamation low and your insulin sensitivity high and find an expert in TRT

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Auto-immune diseases are another fun one. I have Heberden’s nodes on my fingers at 33. Maybe I’m lucky and have rheumatoid arthritis as well. Or as House MD would diagnosis me with…LUPUS!

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Your right, I inferred from OP’s writings.

And one should not label someone as an Alcoholic, that’s up to them.

Apologies, Mr Artery, Oppenheimer.

51

If you’re in a state where you can get your own blood work done I’d spend a little money on that Lyme disease test.

You said you felt better when your E was higher…I really feel you can feel so much better in a few weeks by following my advice. Stay the course man. Get that straight and then go after the next thing.

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If that’s the worst mistake you make, you will stay way ahead of me.

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Damn, I’m not going to suggest anything else. This forum should be a place to learn from and probably make friends to help you get through this. But a proper set of doctors is what you need in order to get things in line. So learn as much as you can without guessing about what you’re suffering from, and use the information to make your doctors work for you without coming across as condescending. Welcome to the forums, and read, participate and share. Cheers!

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Okay, so since you’re backed by billionaires, pay to play is something you’re used to hearing. Time to see a TRT doc. No more excuses. This is the pivotal moment in which you just do that and never look back. If youre paying directly, they will hear you out. This convo were all having is support, so that you don’t fall, but its not the steps forward that you will be taking on your own. Pay a doc and report back.

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Yes I appreciate the support. I know this isn’t an endocrinology forum or rare disease forum. Pretty wild there’s so few places for patient support or discussion for things. TRT forums have a lot of smart people, but I think 90% of the guys on here are, “normal” in the sense that nothing is chronically wrong with them.

Yeah, might have to suck it up for Defy or some clinic and see if I can find a doctor that knows what they’re doing. Sad that’s the medical system. I pay more out of pocket for deductibles and insurance than I would for TRT from a clinic. Anyway, thanks. Will report any updates on bloodwork if I ever solve it. Over and out!

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@oppenheimer, bud, I’m going to risk overstepping myself on this one and say something: You might consider the possibility that you’re identifying too closely with your list of physical ailments to be of any usefulness to yourself. Just inside this thread you’ve oscillated between I think three separate, rare medical conditions, and rapidly. This isn’t normative behavior and I don’t think it’s good for you.

I don’t deny that you’re suffering - you clearly are, and you have my sympathy. You’ve received a lot of advice and thought here, and I feel like you’re getting the best of the help these men have to offer. I would just encourage that whatever you do, try to stop identifying with ailment and try to withhold any judgement on yourself, old or new physical symptoms, or thoughts. Since you’ve tried the diagnostic route already and for quite a long time, I feel like this mode of being may be helpful for you whether you have a serious disease to address in your future or not.

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Did you see my question about feet. Did your shoe size get bigger in the last couple of years?
You mention teeth and jaw. These are sure signs of acromegaly esp if feet getting bigger at this age.

These are serious problems.

I think you should spend time researching drs and professionals that can help you. Like endocrinologist, urologist, gastroenterologist.
I personally would start with an endocrinologist. Maybe even a clinical psychologist who can dx autism and such. Perhaps a pediatric endocrinologist who is familiar with the disorders you mention.

Let us know what city you live near and maybe we got recommendations.

Trt sounds like it is the least of your concern.

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I’m going to review your list of suggested tests. No I havn’t noticed any change in my feet size. Again, there can be cases where rapid growth starts, then tumors shrink, so if it wasn’t caught. To @breakerjumper I agree, I’ve bounced a lot, but with a reason.

The thing is, as a scientist, when I have a hypothesis, I get to test that to see if it’s true or not. If one hypothesis fails, I can move onto the next. No doctor has ever taken a scientific approach to rule things out on me, besides the very basic, TSH, LH/FSH, Prolactin, ACTH, Cortisol.

The reason there’s a few potential diseases is because…those all share similar symptoms. Someone is writing journal articles on these rare cases…and I think conditions like these are very under-diagnosed because 1. a doctor needs to understand the proper diagnosis and 2. they need to even be the type of doctor that would publish. Even outside Boston, this is not the usual.

So there’s a few potentials…would a doctor even know how to test for a latent viral infection? Would they even know how to diagnose pseudo-acromegaly? Doubtful. And so, by doing research and comparing symptoms, and phenotypic displays of certain diseases, and giving this to my doctor. They start to say, wow this kid is bugging me. He wants answers as to why he’s felt like shit for 25 years and never grew a beard, and now can all of a sudden grow a beard.

I told him to take 200mg of testosterone every 2 weeks for the rest of his life, without any answers or explanations. How is he not satisfied? Never had a sperm sample taken, never even asked if I wanted to freeze sperm before going on TRT. Just, here is your option for life.

Rare disease folks, if I"m even one, go on a “diagnostic odyssey” and spend decades trying to just talk to someone to listen, or better yet, that knows what they’re doing. Not uncommon. Frustrating, but the norm.

Look at this story.

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Your case is a very particular one and I hope you’ll be well as soon as possible. Unfortunately doctors know very little about humans than how much they think, and probably their profession bring them to be a little mind closed to play the safe game, unlike researchers.

I don’t have suggestion on TRT, because clearly there are people more informed than me here, but if you are not on psychotherapy, I highly suggest to, because clearly this condition is eroding yourself psychologically, and you need some sort of purely hunan and psychological support, not only medical one. Only, be eventually careful with antidepressants if suggested by doctors: a lot of approaches could be detrimental even on people with a simpler profile than yours, so given your condition you should be even more careful.

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61

I don’t suppose anyone took a second to look at his labs?

His free T on average for the last year calculates as 9ng/dL. If I had 9 I would have killed myself by now. He only recently got as high as 22 ng/dL.

He is severely deficient in testosterone.

Thyroid needs addressing as well.

Why is everyone making this so complicated?

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Honestly, I think he needs more T also, but since he feels 140mg is too much, there’s no point in pressing it.